The ALS Association is committed to doing whatever it takes to make ALS for everyone, everywhere, until we find a cure. Working to improve and provide care and support services is just one way we will help make that a reality.
ALS follows no predictable path and adheres to no set timeline. Planning ahead helps to alleviate some of the chaos of change, but how do you know what to plan for or what questions to ask? My ALS Journey™ is an interactive, web-based tool that allows people living with ALS to take control of their journey with the disease.
The FDA announced it has granted accelerated approval to tofersen, a treatment for people living with mutations of the SOD1 gene. This is a significant victory for the ALS community and our efforts to make ALS livable for everyone, everywhere, until we can cure it.
For people with ALS, multidisciplinary care has been shown to extend survival and improve life quality. We are committed to expanding this network insuring people with ALS, regardless of where they live, have access to this type of critical care.
We are excited to announce the addition of three new Certified Treatment Centers of Excellence in Texas, Pennsylvania and Virginia! Find a Certified Center or clinic near you.
For people with ALS, an occupational therapist (or OT) is there to help them maintain their independence for as long as possible as well as to find ways to maintain their quality of life. Explore the many, and varied, ways an OT can make a difference.
While the services a social worker provides to a person with ALS and their family is not all that different than what they would provide to other clients, the nature of the disease and ALS multidisciplinary care often leads to a close, ongoing relationship.
To continue to follow stories about people living with ALS in the community and learn more about the disease, subscribe to receive our weekly blogs in your inbox HERE or follow us at als.org/blog.
The ALS Association collaborates with some of the best ALS physicians and clinics across the United States to help ensure that people living with ALS have access to specialized care.
Our nationwide network of chapters and partners deliver a robust portfolio of care and support programs designed to enhance quality of life and support families impacted by ALS.
Support groups are a great resource for people to maintain control over their lives, to give and take the wisdom and experience that comes from living with a devastating illness.
We have assembled multiple resources, including publications and videos produced by the Association, and other related books, fact sheets and resource guides pertaining to ALS and ALS care.
For more information, visit our website at als.org.
Stay up to date with the latest ALS research news by signing up for our monthly e-newsletter, Research Matters.
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