The ALS Association is committed to doing whatever it takes to make ALS a livable disease until a cure is found. Providing care and support services is just one way we are working to make that a reality.
This issue we are focusing on mobility changes people living with ALS face and the critical role planning and informed decision-making plays in increasing quality of life and survival time for people living with ALS.
Decreasing mobility is a challenge faced by every person living with ALS at some point in their disease journey. Finding ways to help people maintain their independence and prevent potential harms caused by everyday living activities is a priority.
To help address the many questions and concerns people and their families often have, The ALS Association has developed a series of educational videos to introduce and explain strategies to remain safe while living with ALS.
Making proactive modifications in your home can help to prevent potential harms caused by everyday living activities and retain independence for as long as possible during your ALS journey.
Shannon Terrell, Doctor of Physical Therapy, shares valuable information about the types of equipment and technologies available today, the importance of being proactive in decision making and the many professionals to turn to for help and expertise in planning for future mobility changes.
As ALS progresses, most people gradually lose their ability to use their limbs as their muscles weaken. Occupational therapists provide expertise and creative solutions to help patients better manage daily activities for as long as possible.
The ALS Association collaborates with some of the best ALS physicians and clinics across the United States to help ensure that people living with ALS have access to specialized care.
Our nationwide network of chapters and partners deliver a robust portfolio of care and support programs designed to enhance quality of life and support families impacted by ALS.
Support groups are a great resource for people to maintain control over their lives, to give and take the wisdom and experience that comes from living with a devastating illness.
We have assembled multiple resources, including publications and videos produced by The Association, and other related books, fact sheets and resource guides pertaining to ALS and ALS care.
For more information, visit our website at
als.org.
Stay up to date with the latest ALS research news by signing up for our monthly e-newsletter, Research Matters.
We welcome all feedback, comments and questions you may have on anything about the information provided, suggestions of topics you would like to see in future newsletters or thoughts to help us improve. Please email us at communication@alsa-national.org.