The ALS Association is committed to doing whatever it takes to make ALS a livable disease until a cure is found. Providing local care and support services will help make that a reality.
In this issue we focus on nutrition, holiday celebrations, resources available for the ALS community and the various ways people can help families impacted by ALS.
The ALS Association has launched a free online caregiving course created with guidance from people who have lived the role and who have shared their journeys in hopes they can make the path easier for future caregivers.
To help spread awareness of caregiver needs and initiate the conversation about the ways you can help families impacted by the disease, the Association has put together these top ten tips.
In recognition of National Family Caregiver Month in November, the Association shined a light on the guidance, resources, and support available for ALS caregivers.
The Family Caregiving Advisory Council was established in 2018 to support the creation of a strategy to support family caregiving. In September, the Council issued its preliminary report on the state of family caregiving, including 26 recommendations on how to better support family caregivers.
Holiday celebrations and traditions are times of fun, fellowship and of course, food. And, while the holidays are meant to be enjoyed, they can also add stress to people living with ALS and their families. Learn tips to help enjoy the holidays and find delicious easy-chew, easy-swallow recipes the whole family will enjoy.
As ALS progresses, the challenges of maintaining good nutrition as well as avoiding malnutrition change. With the support of caregivers and a multidisciplinary care team, these challenges can be managed to provide both the best nutrition and best quality of life at all stages.
To continue to follow stories about people living with ALS in the community and learn more about the disease, subscribe to receive our weekly blogs in your inbox HERE or follow us at als.org/blog.
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The ALS Association collaborates with some of the best ALS physicians and clinics across the United States to help ensure that people living with ALS have access to specialized care.
Our nationwide network of chapters and partners deliver a robust portfolio of care and support programs designed to enhance quality of life and support families impacted by ALS.
Support groups are a great resource for people to maintain control over their lives, to give and take the wisdom and experience that comes from living with a devastating illness.
We have assembled multiple resources, including publications and videos produced by The Association, and other related books, fact sheets and resource guides pertaining to ALS and ALS care.
For more information, visit our website at als.org.
Stay up to date with the latest ALS research news by signing up for our monthly e-newsletter, Research Matters.
We welcome all feedback, comments and questions you may have on anything about the information provided, suggestions of topics you would like to see in future newsletters or thoughts to help us improve. Please email us at communication@alsa-national.org.