The purpose of the scholarship fund is to provide financial assistance to students pursuing an accredited college degree or vocational certificate, and whose ability to cover the costs is severely compromised as a result of their family’s financial burden of ALS.
People living with ALS will likely experience complications related to the disease that warrant a visit to the hospital at some point in their journey. At the same time, they are not immune from other injuries or medical issues—people with ALS can still get sick or possibly hurt themselves in ways unrelated to the disease. Making the conscious choice to be prepared can make all the difference.
In a study funded in part by The ALS Association’s TREAT ALS program, researchers from Northwestern University have identified the first compound (NU-9) that eliminates the ongoing degeneration of diseased upper motor neurons, a key contributor to ALS. While this news is exciting, this study has only tested the compound in mice and in laboratory neurons and is in the very early stages.
While local conditions for events vary state by state, the priority is the safety and well-being of people with ALS, their families and caregivers, and our volunteers and staff. So while Walk to Defeat ALS® events may look a little different from place to place, the ALS community will creatively come together safely in local markets to honor a loved one with the disease, to remember those who have passed, and to raise awareness and critical fundraising support for the fight against ALS.
On the one year anniversary of COVID-19 shutting down the world, Executive Director John Hedstrom of The ALS Association Massachusetts Chapter pens a letter to update the local community on the Chapter's ambitious goals and an exciting new event.
While good nutrition is important for everyone, maintaining proper nutrition and hydration is especially critical for people living with ALS. Sustaining a healthy weight and balanced diet is proven to help improve and maintain quality of life for people struggling with the disease.
Rare Disease Day® is an opportunity to recognize strength in coming together. It is estimated there are more than 7,000 rare diseases affecting 25-30 million Americans. That means one in ten Americans suffer from a rare disease, including people living with ALS.
ALS Focus recently launched its third survey, gathering data from ALS caregivers to identify the unique needs and challenges of ALS caregiving. Responses to this survey will help translate the caregiver experience into action and influence ALS programs and policy decisions. ALS Focus Director Dr. Sarah Parvanta detailed the questions her team is asking in the current survey during a recent episode of Connecting ALS. A portion of that conversation has been edited and condensed below.
The Marcia LaRiche Scholarship Fund can assist dependent sons and daughters of parents who have been diagnosed with Amyotrophic Lateral Sclerosis (ALS) living in northeast Ohio finance their education at a postsecondary institution of their choice.
Connecting ALS recently sat down with Dr. Ericka Greene, Director of the Neuromuscular Clinic Houston Methodist Stanley H. Appel Department of Neurology to learn more about her personal experience working in ALS research and growing up in the STEM field to understand this trend from her perspective.
ALS can take away many things, but one thing it cannot take away is love. In celebration of Valentine’s Day, we wanted to highlight one of many stories of love, commitment and ALS. Meet Jonathan and Janetta Michelsen.
As Feeding Tube Awareness Week comes to a close, we spoke with Brenda and Kelly Kraft and asked them to share their family’s story about their personal experience with making this difficult decision, and the relief they felt once they had made it.