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ALS Association
The Benefits of Physical Therapy for People Living With ALS
October 1st marks the first day of National Physical Therapy Month, a time to raise awareness of the key role that physical therapists play in helping people improve mobility, find relief from pain, and live healthier, more physically able lives.
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ALS Association
Here’s Why the ALS Registry and Biorepository Matters
The National ALS Registry and Biorepository was created back in 2007 to help understand how prevalent ALS is, who is developing ALS, and what the possible causes are. Its mission is also to help support researchers in discovering treatments and cures and in preventing ALS.
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ALS Association
Grief & Loss: Exploring the Emotional Impacts of ALS
We recently spoke with JoCarolyn Chambers, care services manager at The ALS Association, to learn more about her experience in the field of grief counseling, how to handle these difficult and sensitive conversations about loss and the advice she has for people impacted by ALS.
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ALS Association
Q&A: How Amylyx NDA Announcement Moves the Fight for Access to AMX0035 Forward
After Amylyx’s announced that it intends to file a new drug application for AMX0035, The ALS Association immediately called on the U.S. Food and Drug Administration to approve the treatment for all people with ALS as soon as possible. Connecting ALS talked to the team at Amylyx to learn about the path ahead for access to AMX0035.
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ALS Association
Case of AMX0035 Proves Advocacy from ALS Community Can Impact Drug Development
There is a lot to do, and this grounded focus of making ALS livable helps us hold everyone—ourselves, the FDA, and the research community—accountable to real impacts on real people with ALS and the time it takes to deliver those impacts. This week has been a big step forward for the ALS community, and we will continue urgently working to keep the momentum going.
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ALS Association
Researcher Spotlight: Yichen Li, Ph.D.
We recently talked with Dr. Yichen Li, postdoctoral fellow from the Ichida Lab at the University of Southern California to learn about her unique project focused on the efficacy of suppressing a gene called SYF2 as a therapeutic strategy for diverse forms of ALS. 
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Massachusetts Chapter
From the Desk of the Executive Director: Join Us for Our 2021 Walks and Ride to Defeat ALS
Executive Director John Hedstrom of The ALS Association Massachusetts Chapter pens a letter to the Massachusetts community offering thanks for support throughout the trials of 2020 and urges participation in the Chapter's 2021 event season. His letter also details how folks can attend the Walk to Defeat ALS either in person or virtually.
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ALS Association
New Potential Therapeutic Target Identified in CHMP7
Dr. Jeffrey Rothstein, professor of neurology and neuroscience and the founding director of the Robert Packard Center for ALS Research at Johns Hopkins University School of Medicine, and Dr. Alyssa Coyne, a postdoctoral fellow at Johns Hopkins, discuss their recent publication of research identifying a cellular defect common in ALS and what it means for research into the disease going forward.
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ALS Association
Providing Independent Living and Quality of Life for People Living With ALS
The physical impact of living with ALS presents multiple challenges for those diagnosed and their families as the disease progresses. With the help of innovative technologies, some facilities around the country are finding creative ways to do whatever it takes to make ALS a livable disease.
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Massachusetts Chapter
Petrovsky Poetry: September Double Feature
Debbie Petrovsky, a woman with ALS residing in Massachusetts, pens poetry to articulate her experience living with the disease. Her unique expression is unique to her experience yet offers insight for those looking to learn more about the challenges of ALS.
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ALS Association
Preparing for the Physical Impacts of an ALS Diagnosis
Taking the time to understand the disease’s progression and make plans to deal with the physical impact can help ease the burdens faced by people living with ALS and their caregivers, helping them live longer, stronger, more independent lives.
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ALS Association
Doing Whatever It Takes to Provide Care for People Living With ALS
Our ALS Certified Centers and clinics around the country are committed to doing whatever it takes to provide the best possible multidisciplinary care and support for people living with ALS and their families. Their dedicated teams of healthcare professionals are specially trained to address their patient’s needs, allowing them to receive care from each discipline during a single visit. Recently we caught up with Angel Preece, registered nurse and clinic coordinator at The Neuromuscular Center at Hospital for Special Care, ALS Center of Excellence, in New Britain, Connecticut and she shared what it is typically like to visit their clinic, interact with her team and receive collaborative care from numerous clinicians during one appointment.
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ALS Association
Researcher Spotlight: Nishal Shah, Ph.D.
We recently spoke with Nishal to learn more about him and his unique project focused on providing an assistive communication device for people with severe speech and motor impairment due to ALS using an intracortical Brain Computer Interface (iBCI).
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