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Florida Chapter
Guest Speaker: Jeanne Struve, RD/N, LD
Jeanne Struve, RD/N, LD, dietician/nutritionist from the Affiliated ALS Clinic at Lee Health, gives nutrition advice to people living with ALS.
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Northern Ohio Chapter
Applications open for 2021-22 The Jane Calmes ALS Scholarship Fund
The purpose of the scholarship fund is to provide financial assistance to students pursuing an accredited college degree or vocational certificate, and whose ability to cover the costs is severely compromised as a result of their family’s financial burden of ALS.
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DC/MD/VA Chapter / ALS Association
Vicki Sawyer: A True ALS Hero
Once she was diagnosed with ALS, the determination she showed throughout her life immediately took hold. Her attitude was “let us fight”, and her motto instantly became, “So What, Now What!”
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ALS Association
Preparing for a Medical Emergency While Living with ALS
People living with ALS will likely experience complications related to the disease that warrant a visit to the hospital at some point in their journey. At the same time, they are not immune from other injuries or medical issues—people with ALS can still get sick or possibly hurt themselves in ways unrelated to the disease. Making the conscious choice to be prepared can make all the difference.
Blog
ALS Association
Reasons for Hope in ALS Research with the Discovery of NU-9
In a study funded in part by The ALS Association’s TREAT ALS program, researchers from Northwestern University have identified the first compound (NU-9) that eliminates the ongoing degeneration of diseased upper motor neurons, a key contributor to ALS. While this news is exciting, this study has only tested the compound in mice and in laboratory neurons and is in the very early stages.
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ALS Association
The Walk to Defeat ALS® Continues to March on Safely This Spring
While local conditions for events vary state by state, the priority is the safety and well-being of people with ALS, their families and caregivers, and our volunteers and staff. So while Walk to Defeat ALS® events may look a little different from place to place, the ALS community will creatively come together safely in local markets to honor a loved one with the disease, to remember those who have passed, and to raise awareness and critical fundraising support for the fight against ALS.
Blog
Massachusetts Chapter
From the Desk of the Executive Director: March 2021
On the one year anniversary of COVID-19 shutting down the world, Executive Director John Hedstrom of The ALS Association Massachusetts Chapter pens a letter to update the local community on the Chapter's ambitious goals and an exciting new event.
Blog
ALS Association
What ALS Focus Hopes to Learn from ALS Caregivers
ALS Focus recently launched its third survey, gathering data from ALS caregivers to identify the unique needs and challenges of ALS caregiving. Responses to this survey will help translate the caregiver experience into action and influence ALS programs and policy decisions. ALS Focus Director Dr. Sarah Parvanta detailed the questions her team is asking in the current survey during a recent episode of Connecting ALS. A portion of that conversation has been edited and condensed below.
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ALS Association
The Michelsens' Journey with Love and ALS
ALS can take away many things, but one thing it cannot take away is love. In celebration of Valentine’s Day, we wanted to highlight one of many stories of love, commitment and ALS. Meet Jonathan and Janetta Michelsen.
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