After my dad was diagnosed, there was no hesitation that our family was going to fight alongside him. So that meant it was time to volunteer with The ALS Association. We all knew right then and there that our volunteer work wasn’t going to save our father, but it was going to help others not feel the devastation we were feeling at the time of his diagnosis.
Jake met Bill Wechsler during his freshman year in high school in Holliston, MA. Challenged with academic and mental health issues at the time, Jake was referred to Bill who was the school social worker for counseling and support. By the spring of his junior year, Jake had made so much progress he no longer needed the formal counseling he had become accustomed to, but he still frequently visited Bill to spend time talking with him. It was around that same time that Bill was diagnosed with ALS.
While thinking about what I could do that would be a special and fun fundraiser, I noticed a famous drag queen asking for donations to a nonprofit on her social media and I thought “How do I get her to do that for The ALS Association?”
I’m hopeful because when my father left us, he left a piece of himself with me, and I’ll do everything I can to raise as much money and awareness as possible so that those three letters - A L S - are no longer considered a death sentence.
Today, in Major League ballparks across the country, fans will take part in the celebration of the second annual Lou Gehrig Day, an event to help spread awareness and raise funds for people living with ALS and their families. And no baseball fan is more excited than Larry Falivena.
Just in time for Walk season Skippy's Team is the stuff of legend at the Milwaukee Walk to D'Feet ALS.
Over 100 team members strong, Robyn and the crew just don't quit. Year after year they gather, now going on 7 years since Kip's passing, and set records for raising hope and funds.
Stomp Out ALS is a third-party fundraiser hosted by Brandi Hyatt in memory of her father Jack who passed away in 2017. The event is centered around the Kentucky Derby - getting dressed up, wearing big hats, eating delicious Southern-themed food and baked goods, picking horses and other Derby-related activities.
Mike will never forget receiving a phone call telling him that his best friend, Matt, had been diagnosed with ALS. The first event Mike attended for The ALS Association was a golf event in Janesville with Matt. That one event has now become years of walks and third-party events supporting The ALS Association Wisconsin Chapter.
The Jane Calmes ALS Scholarship Fund is now accepting applications for the 2022-2023 school year! This fund will provide a $5,000 scholarship to students seeking a college degree or vocational certificate who have been financially burdened by an ALS diagnosis. The deadline to apply is May 18, 2022.
We recently caught up with Lindsay Litterini, volunteer and board member for The ALS Association Western Pennsylvania Chapter, to learn more about her personal connection to ALS and her passion to join the fight against the disease.
Super Doc Joe Kelley was a veterinarian near Madison, WI. He left a legacy of love, laughs, and generosity.
Brenna Kelley, daughter of Super Doc Joe Kelley, shares with us Dr. Joe's story and the children's book that was written about him.
Spring feels like it’s just around the corner for most of us, and that means ALS communities nationwide are preparing to kick off their 2022 Walk to Defeat ALS® events. And if the hard work and dedication we see each year from our incredible volunteers and families is any indication, it’s sure to be yet another amazing opportunity to join the fight for all those impacted by ALS.
Since high school, twenty-two-year-old Wil Armstrong dreamed of cycling across the country. After witnessing the impact of ALS on Rodney Lapp, his former mentor and high school basketball coach, Wil found his purpose to make this dream a reality.
Executive Director John Hedstrom of The ALS Association Massachusetts Chapter pens a letter to the Massachusetts community offering thanks for support throughout the trials of 2020 and urges participation in the Chapter's 2021 event season. His letter also details how folks can attend the Walk to Defeat ALS either in person or virtually.
To help empower kids in the fight against ALS, The ALS Association is celebrating the third annual ALS Youth Action Day on Saturday, May 15. It’s a day where kids across the country can take the ALS Youth Challenge and use the power of their creativity to help raise awareness and critical funds that help researchers around the world look for treatments and a cure while enabling people with ALS to live longer, higher quality lives.