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ALS Association
Celebrating International Day of Women and Girls in Science
This week the world turned their focus to the celebration of women and girls in science, shining a light on the tremendous gender gap that still exists in the world of science. We asked Jill Yersak, Ph.D., Vice President of Mission Strategy at The ALS Association about her personal experience growing up in the STEM field.
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ALS Association
Feeding Tube Awareness Week Q&A
This week, The ALS Association commemorates Feeding Tube Awareness Week, an opportunity to recognize the important role that feeding tubes can play in the lives of people with ALS.
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ALS Association
COVID Webinar Updates Community on Vaccine Access
The ALS Association recently hosted an COVID-19 update webinar for the ALS community, with panelists Dr. Lou Libby, Dr. Richard Bedlack, Dr. Cherise Rohr-Allegrini, Dr. Urvi Desai and Dr. Marinella Galea, moderated by ALS Association Board of Trustees member Dr. Ken Menkhaus, addressing issues specific to the concerns and interests of the ALS community.
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ALS Association
One Man’s Story About Why He Joined the Fight Against ALS
Through word of mouth, Stuart and his wife Marcia found five or six families in their community who were also dealing with the impact of an ALS diagnosis. They started an informal support group. The group started working with the chapter relations team at The ALS Association and formed The ALS Association Alabama Chapter.
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ALS Association
New Biomarker Initiative Shows Continued Success of Research Program
Research supported by The ALS Association, through a $1.4 million grant, has grown into a $15 million program to identify biomarkers – things in the body like heart rate or fluid levels that can be measured in order to diagnose and track progression of a disease. Currently there are no biomarkers for ALS, making it a critical, unmet need in the field.
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ALS Association
Going the Extra Mile to Fight ALS
After watching his Aunt Christie battle ALS for more than nine years, twenty-one-year-old Ryan Wilson was determined to find a way to honor her fight and make a difference for the ALS community. So, he decided to ride his bike from Poughkeepsie, NY to Miami, FL to help raise awareness and funds for ALS research.
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ALS Association
The Michelsen Family and Living with ALS
Six months after their wedding, Jonathan began noticing unusual weakness in his right hand which persisted, and then seemed to inexplicably spread into his right leg. Because of his medical education, he suspected ALS.
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ALS Association
Biogen Shares Latest Updates on ALS Clinical Trials
Despite the many challenges caused by COVID-19 this past year, ALS research made strides toward finding effective treatments for ALS. As 2020 winds down, we wanted to share an update from our partners at Biogen on some of their ongoing research projects.
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ALS Association
The Stevens: One Family’s Journey Living With ALS
We recently spoke with George Stevens – husband, father, grandfather, and a person living with ALS. George and his family live in Maine and have been very involved with The ALS Association Northern New England Chapter. Here is what George had to say about his journey with ALS in his own words.
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ALS Association
My Family’s Journey with ALS
Our family’s journey with ALS was no doubt the saddest and hardest thing we ever encountered. But we managed to stay strong through it, and the entire experience brought us all even closer together. In the end, it became the most special and magical journey our family ever had together.
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ALS Association
The O’Briens: One Family’s Journey Living With ALS
We recently spoke with Hugh O’Brien – husband, father, grandfather, and a person living with ALS. Hugh and his family live in Pennsylvania and have been very involved with The ALS Association Western Pennsylvania Chapter. Here is what Hugh had to say about his journey with ALS in his own words.
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ALS Association
ALS Advocacy Pays Off With Enormous Win Ending SSDI Waiting Period
The ALS community earned a hard-fought victory this week with passage of the ALS Disability Insurance Access Act, ending the five-month waiting period for people with to start receiving their Social Security Disability Insurance (SSDI) benefits.
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ALS Association
The Poiriers: One Family’s Journey Living With ALS
We recently spoke with Kathleen Poirier - wife, mother, and a person living with ALS. Kathleen and her family live in Florida and have been very involved with The ALS Association Florida Chapter. Here is what Kathleen had to say about her family’s journey with ALS in her own words.
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