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ALS Association
How Our Family Found Hope in the Fight Against ALS
Amber Letters is a wife, a mom, a sister, and was a part-time caregiver for father who lost his battle with ALS this year. To honor her father’s legacy, she is sharing her family’s personal story, their journey with ALS and how they found hope along the way.
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ALS Association
Eddie Ilarraza: Doing Whatever it Takes to Make His Dreams Come True
Eddie Ilarraza was diagnosed with ALS in 2002, and while his body may have slowly succumbed to the disease over the years, his mind and his spirit have not. Eddie graciously shared his story about his personal journey living with ALS, and how his determination to do whatever it takes to achieve his hopes and dreams has prevailed.
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ALS Association
A Spirit in Flight: One Man’s Journey Living with ALS
Eric wanted to share his story about his journey with the world, about his colorful past and his inspiring present living with ALS. So, he and his family joined up with filmmaker David Gaynes and his team at DG Filmworks, creating a heartening documentary, “A Spirit in Flight”; an intimate portrait of Eric, his life, and how he is living life to the fullest after his diagnosis with ALS.
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Alabama Chapter / ALS Association
ALS and the Financial Burdens it Presents to Families Living with the Disease
People living with ALS and their caregivers face substantial financial burdens accessing and understanding insurance coverage and paying for medical treatments and services, causing high stress, added work burden and tremendous debt for individuals in the ALS community. No one understands this more than Jimmie and Dennis Thomasson in Mobile, Alabama.
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ALS Association
Warm Summer Night, a Moment the Vickers Family will Never Forget
Many believe that all it takes is one song to bring back 1,000 memories, moments we hold dear and relive in our minds every time we listen to it. No one knows this better than the Vickers family, sharing their beautiful memories and storytelling through music, rhythm and melody.
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ALS Association
Kevin Heller: A True ALS Hero
Since 2019, Kevin Heller -- a West Point graduate and U.S. Army veteran who was diagnosed with ALS at the age of 58 -- and his team #GiveEmHeller, put their hearts and souls into the nation’s top-grossing ALS fundraiser, the Napa Valley Ride to Defeat ALS and Walk.
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St. Louis Regional Chapter / ALS Association
Pattie Hamlin: A True ALS Hero
“Shortly after being diagnosed, I began researching and discovered how devastating this disease really is,” Pattie says. “In those early months I struggled emotionally with the outlook that was now my reality. Eventually, I chose to use my situation as motivation to try and make a difference for the future of ALS.”
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ALS Association
Now Accepting Applications: The Jane Calmes ALS Scholarship Fund Launches Year Three
The ALS Association is now accepting applications for The Jane Calmes ALS Scholarship Fund for the upcoming 2021-2022 school year. Established in 2019, the scholarship is designed to support post-high school education for students whose lives have been impacted by ALS, with recipients receiving up to $5,000 per year to help cover the cost of education.
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Minnesota/North Dakota/South Dakota Chapter / ALS Association
Geraldine Skager: A True ALS Hero
“To say that Gae Skager has been a beacon of hope in the ALS community is a significant understatement,” says Anne Supplee, Care Services Coordinator from The ALS Association Minnesota, North Dakota, South Dakota Chapter. “Since her diagnosis in 2003, Gae has made it her mission to educate others, raise awareness and fund research for ALS.”
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DC/MD/VA Chapter / ALS Association
Vicki Sawyer: A True ALS Hero
Once she was diagnosed with ALS, the determination she showed throughout her life immediately took hold. Her attitude was “let us fight”, and her motto instantly became, “So What, Now What!”
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ALS Association
The Michelsens' Journey with Love and ALS
ALS can take away many things, but one thing it cannot take away is love. In celebration of Valentine’s Day, we wanted to highlight one of many stories of love, commitment and ALS. Meet Jonathan and Janetta Michelsen.
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ALS Association
Celebrating International Day of Women and Girls in Science
This week the world turned their focus to the celebration of women and girls in science, shining a light on the tremendous gender gap that still exists in the world of science. We asked Jill Yersak, Ph.D., Vice President of Mission Strategy at The ALS Association about her personal experience growing up in the STEM field.
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ALS Association
One Man’s Story About Why He Joined the Fight Against ALS
Through word of mouth, Stuart and his wife Marcia found five or six families in their community who were also dealing with the impact of an ALS diagnosis. They started an informal support group. The group started working with the chapter relations team at The ALS Association and formed The ALS Association Alabama Chapter.
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ALS Association
The Michelsen Family and Living with ALS
Six months after their wedding, Jonathan began noticing unusual weakness in his right hand which persisted, and then seemed to inexplicably spread into his right leg. Because of his medical education, he suspected ALS.
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ALS Association
The Stevens: One Family’s Journey Living With ALS
We recently spoke with George Stevens – husband, father, grandfather, and a person living with ALS. George and his family live in Maine and have been very involved with The ALS Association Northern New England Chapter. Here is what George had to say about his journey with ALS in his own words.
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