Blog

12 results
ALS Association
What Is FTD and How Is It Connected to ALS?
An ALS diagnosis is a devastating diagnosis in and of itself, but to learn your loved one has FTD as well can make it even more challenging to comprehend.
Blog
ALS Association
Increasing Awareness of ALS in Rural Communities
Health disparities in underserved and rural communities present serious challenges for people living with ALS. Like many of our local chapters around the country, The ALS Association Central and Southern Ohio Chapter and the team at OhioHealth ALS Clinic are working together to change that. In the fall of 2019, Michelle Edwardson, Director of Care Services for the chapter, began working with the team at one of their Certified Centers of Excellence, OhioHealth ALS Clinic, to develop a one-day comprehensive educational symposium for people living with ALS, their caregivers and medical professionals.
Blog
Florida Chapter
Guest Speaker: Jean Mendolia, RD
Jean Mendolia, RD, clinical dietitian at the Phil Smith Neuroscience ALS Clinic, gives nutrition advice to people living with ALS.
Blog
Florida Chapter
Guest Speaker: Jeanne Struve, RD/N, LD
Jeanne Struve, RD/N, LD, dietician/nutritionist from the Affiliated ALS Clinic at Lee Health, gives nutrition advice to people living with ALS.
Blog
ALS Association
Preparing for a Medical Emergency While Living with ALS
People living with ALS will likely experience complications related to the disease that warrant a visit to the hospital at some point in their journey. At the same time, they are not immune from other injuries or medical issues—people with ALS can still get sick or possibly hurt themselves in ways unrelated to the disease. Making the conscious choice to be prepared can make all the difference.
Blog
ALS Association
Feeding Tube Awareness Week Q&A
This week, The ALS Association commemorates Feeding Tube Awareness Week, an opportunity to recognize the important role that feeding tubes can play in the lives of people with ALS.
Blog
ALS Association
Questions and Answers about COVID-19 and Its Impact on People with ALS
March 23, 2020 – We have received many questions about COVID-19 and its impact on people with ALS, their families, and their caregivers. We convened a panel of volunteers and staff to answer these questions – their bios are at the bottom. This situation is rapidly changing. We will update this FAQ as we receive more questions and more current information.
Blog
ALS Association
Care Services Educational Offerings Update – March 2017
In late-February 2017, The ALS Association announced the release of 11 new Living with ALS resource guides on our website, www.alsa.org. The guides were designed to inform and educate people about ALS in a comprehensive and easily understood format, addressing many of the common concerns and issues that face people living with ALS.
Blog
ALS Association
Announcing the Updated Living with ALS Resource Guide Series
Over the last year and a half, The ALS Association has been working with authors from Association Chapters, ALS centers and clinics and other ALS organizations to rewrite the original Living with ALS manual series, adding new and relevant content. The series has been developed for people living with ALS, family members, caregivers and other healthcare professionals, as well as our chapter and national staff.
Blog
Alabama Chapter
Helping Kids and Teens Deal with ALS and Grief
Children and teens that see a parent, grandparent or other family member progress with ALS and experience death are not immune to the pain, anger, frustration and confusion that adults experience. Depending on their age and maturity level, their understanding and needs vary widely and it can be very challenging to know how best to help them.
Blog