Blog

Wisconsin Chapter
Finding Her Story: Erin Vierstra
Erin Vierstra found the group Her ALS Story while scrolling on Instagram a little over a year ago. Erin's story is one with a long family history, and being a part of this group of women has given her a support, space to be, a platform and inspiration to keep a good thing going and growing.
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ALS Association
Finding Support When and Where You Need It Most
The urge to support, or be supported, is often accentuated at times of great challenge, or uncertainty. As anyone living with ALS or being an ALS caregiver knows, this disease can bring plenty of both. That’s why The ALS Association provides support groups in every state. 
Blog
ALS Association
Tips for Caregiver Self Care—A List of “To Dos”
In some way, shape or form, we are all list people. Some people are of the pen and paper list variety, others have taken to keeping notes on their phone or online calendar. And even those who would claim to not keep lists probably have an idea of some “to dos” they keep in their head. For ALS caregivers, far too often the last thing on their lists is themselves. So, here’s a list of ALS caregiver “to dos” for their own self-care and wellness.
Blog
ALS Association
Mindful Mobility
Heidi Tarr Henson, diagnosed with ALS last spring, shares thoughts about her personal journey living with the disease, how she’s managing her personal changes in mobility and how she strives to just live in the moment.
Blog
Florida Chapter
Ricky and Carole Neal – When Love Collides
Ricky and Carole Neal met on July 4th, 1985 at a car crash scene and experienced what some call "love at first sight." In the face of ALS, the couple moves forward together building mountains of support around them.
Blog
Florida Chapter
Loving Between the Divide
Despite divorce amidst the ALS diagnosis, Gladys and Hector Villalobos remain friends and proud grandparents. Their hearts remain full of love for their family.
Blog
ALS Association
Sarah Trott: ALS and Handling Grief and Loss
Connecting ALS recently sat down with Sarah Trott to learn more about her experience as an ALS caregiver for her father who recently lost his battle with ALS, and better understand the challenges with grief she has experienced and the steps she is taking to overcome her terrible loss.
Blog
Florida Chapter
Elizabeth Bradley: From Grief to Grad Student
Elizabeth Bradley lost her husband Woody to ALS, and has used his passing as inspiration to pursue a Master of Science in Psychology.
To complete her research project, she needs survey responses soon!
Blog
ALS Association
Sharing Advice for My Fellow ALS Caregivers
My husband’s ALS journey is not unique. It started with weakness in his left leg, and a few other puzzling issues which he began to note around 2010. We didn’t do anything about it until October 2012, when things got more puzzling.
Blog
ALS Association
ALS Advice from One Caregiver to Another
When your loved one receives a diagnosis of ALS, you transition into a new role as a caregiver. This may happen gradually over time, or quickly, catching you off guard and possibly unprepared. Regardless of where you are in your caregiving journey, who better to accept advice, guidance and emotional support from than other families and caregivers who are living through similar experiences?
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ALS Association
Loving and Caregiving for Someone Living with ALS and FTD
My husband's ALS diagnosis didn’t explain the symptoms I was seeing. I searched the internet late at night and concluded that he also had Frontotemporal Dementia (FTD). Symptoms of FTD include a loss of empathy and executive function, an increase in inappropriate actions, a lack of judgement and inhibition.
Blog
ALS Association
Finding Critical Resources for ALS Caregivers
The Association provides free online access to a variety of options, including publications, videos, books, and informative websites that provide a wealth of easy-to-access information on important topics relevant for people living with ALS and their caregivers. 
Blog
Florida Chapter
Guest Speaker: Jean Mendolia, RD
Jean Mendolia, RD, clinical dietitian at the Phil Smith Neuroscience ALS Clinic, gives nutrition advice to people living with ALS.
Blog
Florida Chapter
Guest Speaker: Jeanne Struve, RD/N, LD
Jeanne Struve, RD/N, LD, dietician/nutritionist from the Affiliated ALS Clinic at Lee Health, gives nutrition advice to people living with ALS.
Blog