Blog

ALS Association
True Awareness
Diagnosed with ALS last spring, Heidi Tarr Henson, Ed.D., shares thoughts about her personal journey living with the disease and what real awareness of ALS means to her.
Blog
ALS Association
Ken Paves: My Mother Was My Everything
In celebration of mothers everywhere today, we are honored to share the story of celebrity hairdresser and beauty expert, Ken Paves, and his amazing story about life, love and caring for his beautiful mother, Helen, who recently lost her battle with ALS.
Blog
ALS Association
ALS Awareness Month Starts Today: How You Can Help Join the Fight
May is ALS Awareness Month, an opportunity for the ALS community to work together to help educate people about this devastating disease and shine a spotlight on the impact ALS has on the families it touches. To kick off the month of May, we’re highlighting eight easy ways you can help raise awareness this month and beyond.
Blog
Wisconsin Chapter
My name is Peggy Jennerman and my husband, Dave, has ALS
When Peggy Jennerman's husband was diagnosed with ALS, it was not something either of them expected to hear.
As Dave's symptoms progressed Peggy reached out to the ALS Association Wisconsin Chapter and share her experience in her own words.
Blog
Northern Ohio Chapter
The Jane Calmes ALS Scholarship Fund Kicks Off Year Four
The Jane Calmes ALS Scholarship Fund is now accepting applications for the 2022-2023 school year! This fund will provide a $5,000 scholarship to students seeking a college degree or vocational certificate who have been financially burdened by an ALS diagnosis. The deadline to apply is May 18, 2022.
Blog
Wisconsin Chapter
My Dad the Super Doc: Joe Kelley
Super Doc Joe Kelley was a veterinarian near Madison, WI. He left a legacy of love, laughs, and generosity.
Brenna Kelley, daughter of Super Doc Joe Kelley, shares with us Dr. Joe's story and the children's book that was written about him.
Blog
Florida Chapter
Concrete Cowboy Rides for ALS
Gene Nifenecker rode Cash the bull in the Cracker Day Rodeo to raise money for ALS and make his wife, who is living with the disease, smile.
Blog
Florida Chapter
Loving Between the Divide
Despite divorce amidst the ALS diagnosis, Gladys and Hector Villalobos remain friends and proud grandparents. Their hearts remain full of love for their family.
Blog
Florida Chapter
Elizabeth Bradley: From Grief to Grad Student
Elizabeth Bradley lost her husband Woody to ALS, and has used his passing as inspiration to pursue a Master of Science in Psychology.
To complete her research project, she needs survey responses soon!
Blog
Wisconsin Chapter
Profile of Perseverance: Mark Kandel
Mark Kandel began experiencing indicator symptoms of ALS in 2011; falling, difficulty walking, loss of balance, spasticity in his right leg, and foot drop. In October of 2014, at age 59, he received his ALS Diagnosis at Mayo Clinic in Rochester, MN.
Mark is now "66 years young" and attends the Froedtert Clinic working with Dr. Dominic Fee. Despite the abilities he’s lost, Mark’s focus is on the present and what he is still able to do to "keep fighting."
Blog
ALS Association
Wil Armstrong: Riding Against the Wind to Fight ALS
Since high school, twenty-two-year-old Wil Armstrong dreamed of cycling across the country. After witnessing the impact of ALS on Rodney Lapp, his former mentor and high school basketball coach, Wil found his purpose to make this dream a reality.
Blog
Massachusetts Chapter
Petrovsky Poetry: January Feature
Debbie Petrovsky, a woman with ALS residing in Massachusetts, pens poetry to articulate her experience living with the disease. Her unique expression is unique to her experience yet offers insight for those looking to learn more about the challenges of ALS.
Blog
ALS Association
ICYMI: The ALS Association’s Top Ten Blogs of 2021
From the latest updates on ALS research and advocacy to information about caring for people living with ALS and stories from around the country, the Association’s blog covered it all. Here is a quick look at the top 10 features our readers enjoyed most.
Blog
Massachusetts Chapter
Petrovsky Poetry: December Feature
Debbie Petrovsky, a woman with ALS residing in Massachusetts, pens poetry to articulate her experience living with the disease. Her unique expression is unique to her experience yet offers insight for those looking to learn more about the challenges of ALS.
Blog
Massachusetts Chapter
Massachusetts ALS Advocacy: Testimony by John Hedstrom, Executive Director
Executive Director John Hedstrom of The ALS Association Massachusetts Chapter offers a testimony to the Join Committee on Health Care Financing in support of in Support of H. 201 and S. 753, “An Act Advancing Health Care Research and Decision-Making Centered on Patients and People with Disabilities”. Read his statement on behalf of the Massachusetts ALS community here.
Blog