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Wisconsin Chapter
Finding Her Story: Erin Vierstra
Erin Vierstra found the group Her ALS Story while scrolling on Instagram a little over a year ago. Erin's story is one with a long family history, and being a part of this group of women has given her a support, space to be, a platform and inspiration to keep a good thing going and growing.
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Wisconsin Chapter
Caregivers are Your Lifeline
Maureen Stemmelen was diagnosed with ALS in 2016. She has always been known as "the Gatherer", bringing friends, family and community in with open arms and an open heart. Her ALS journey has only served to affirm this, and she encourages everyone to lean in, let your friends, family and neighbors surround you - caregivers are your lifeline.
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ALS Association
Jake Obid: Fighting ALS 26 Miles at a Time
Jake met Bill Wechsler during his freshman year in high school in Holliston, MA. Challenged with academic and mental health issues at the time, Jake was referred to Bill who was the school social worker for counseling and support. By the spring of his junior year, Jake had made so much progress he no longer needed the formal counseling he had become accustomed to, but he still frequently visited Bill to spend time talking with him. It was around that same time that Bill was diagnosed with ALS.
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ALS Association
Celebrating Lou Gehrig Day 2022
Today, in Major League ballparks across the country, fans will take part in the celebration of the second annual Lou Gehrig Day, an event to help spread awareness and raise funds for people living with ALS and their families. And no baseball fan is more excited than Larry Falivena.
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Florida Chapter
Stomp Out ALS - A Derby Day Event
Stomp Out ALS is a third-party fundraiser hosted by Brandi Hyatt in memory of her father Jack who passed away in 2017. The event is centered around the Kentucky Derby - getting dressed up, wearing big hats, eating delicious Southern-themed food and baked goods, picking horses and other Derby-related activities.
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ALS Association
True Awareness
Diagnosed with ALS last spring, Heidi Tarr Henson, Ed.D., shares thoughts about her personal journey living with the disease and what real awareness of ALS means to her.
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ALS Association
Ken Paves: My Mother Was My Everything
In celebration of mothers everywhere today, we are honored to share the story of celebrity hairdresser and beauty expert, Ken Paves, and his amazing story about life, love and caring for his beautiful mother, Helen, who recently lost her battle with ALS.
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Wisconsin Chapter
My Dad the Super Doc: Joe Kelley
Super Doc Joe Kelley was a veterinarian near Madison, WI. He left a legacy of love, laughs, and generosity.
Brenna Kelley, daughter of Super Doc Joe Kelley, shares with us Dr. Joe's story and the children's book that was written about him.
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Florida Chapter
Concrete Cowboy Rides for ALS
Gene Nifenecker rode Cash the bull in the Cracker Day Rodeo to raise money for ALS and make his wife, who is living with the disease, smile.
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Florida Chapter
Loving Between the Divide
Despite divorce amidst the ALS diagnosis, Gladys and Hector Villalobos remain friends and proud grandparents. Their hearts remain full of love for their family.
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Florida Chapter
Elizabeth Bradley: From Grief to Grad Student
Elizabeth Bradley lost her husband Woody to ALS, and has used his passing as inspiration to pursue a Master of Science in Psychology.
To complete her research project, she needs survey responses soon!
Blog
ALS Association
ICYMI: The ALS Association’s Top Ten Blogs of 2021
From the latest updates on ALS research and advocacy to information about caring for people living with ALS and stories from around the country, the Association’s blog covered it all. Here is a quick look at the top 10 features our readers enjoyed most.
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ALS Association
Warm Summer Night, a Moment the Vickers Family will Never Forget
Many believe that all it takes is one song to bring back 1,000 memories, moments we hold dear and relive in our minds every time we listen to it. No one knows this better than the Vickers family, sharing their beautiful memories and storytelling through music, rhythm and melody.
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