By Calaneet Balas
We are on an urgent mission to make ALS a livable disease by 2030, to discover and fund promising treatments and to discover a cure. Our best opportunity to fulfill this promise and to continue delivering in the areas of Care, Advocacy, and Research is to reinvigorate our commitment to work as one. Driven by this belief, we will move from a federated to a unified structure.
This decision was made by our Board of Trustees, which includes people living with ALS, a current caregiver, and those who have lost loved ones, on Friday, July 9, but has been long in the making, informed by robust discussion and deep reflection.
A more unified organizational model means enhanced depth and breadth of care, increased resources and capacity that will allow us to optimize our support to serving people with ALS and their families. Care will continue to be delivered with the same focus through our valued communities across our 34 chapters, one-to-one in this streamlined organization. This decision brings us closer together, unifies us in one direction, one pathway and one goal: to do whatever it takes.
So as the news of our unification plan begins to circulate, we want to pause and reassure our entire community – people with ALS and their families, partners and clinics, and volunteers – of the organization’s ongoing commitment.
While this is a beginning, a new direction that will take a tremendous amount of input, collaboration, thoughtful and deliberate decisions to implement, we approach this process with a renewed sense of urgency. Treatments are in the pipeline, and the global community is counting on us to be as efficient and effective as possible. We are on the cusp of making great strides.
As we begin this journey together, our highest priority will remain staying focused on our work and supporting people with ALS and their families. Moving down this new path together is our best opportunity to achieve our strategic objectives and most effectively align our resources. This is what it takes. We are stronger as one. One team. One mission. One world without ALS.