For individuals living with ALS and their caregivers, navigating health insurance can feel like a maze full of obstacles, delays, and unexpected roadblocks. From understanding coverage options to managing denials and appeals, the process can be overwhelming and daunting, especially when the focus and precious time should be focused on spending time with loved ones and making memories, not fighting insurance companies for coverage.

To help the ALS community navigate these challenges, the ALS Association has created the ALS Insurance Navigator™. This free and interactive resource is designed to support people living with ALS and their families. It provides step-by-step guidance for addressing claim denials, submitting appeals, and securing the healthcare services and benefits.

Our recent ALS Focus survey revealed that about one-third of participants faced denials for necessary services, including medications, power wheelchair modifications, and in-home care. These denials cause anxiety and financial strain, stress, and potentially detrimental delays in treatments, adding to the already significant challenges families and individuals with ALS face. The ALS Insurance Navigator™  was created to support people we serve and simplify complex insurance processes, help users understand why claims are denied and how to effectively appeal. This tool empowers individuals to take proactive steps in securing the coverage they need.

Additional Support: The ALS Insurance and Benefits Resource Line

For more complex financial or insurance issues, the Patient Advocate Foundation (PAF), in partnership with the ALS Association, offers the ALS Insurance and Benefits Resource Line. This service provides individualized case management assistance for people living with ALS, their families, and caregivers.
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Your Story

Have you had to navigate insurance denials and appeals? Sharing your ALS story has the power to educate others, inspire hope, and remind those facing similar challenges that they are not alone. Please continue sharing your stories with us.
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