The ALS Association Updates Terms of Service to Ensure Social Media Serves to Help Advance Our Mission


Social media channels are important and powerful tools to advance our shared mission to "discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.”

However, when people use social media platforms to actively spread misinformation and personal attacks, or threaten violence, they harm all of us – and especially people with ALS and their families. There is too much at stake to allow the bullying and negative attacks of a few individuals to harm progress toward finding treatments and a cure. 

The ALS Association has published community guidelines for our social media channels. We review and update them regularly to stay current with best practices and the expressed wishes of our community. Our newest iteration of these guidelines can be found here.

The ALS community has always demonstrated its amazing potential to accelerate the fight against ALS, with compassion, integrity, and urgency. The ALS Association will continue to encourage and embrace productive and open dialogue so that we may better serve, advocate for, and empower people with ALS and their families, as we urgently work to find treatments and a cure for ALS.  

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