ALS Focus Multimedia

Get the latest ALS Focus news & information through multiple digital channels.


Hearing Directly From the ALS Community Through ALS Focus

Connecting ALS hosts Mike and Jeremy turn their focus to ALS Focus, a survey platform that brings the needs and perspectives of people living with ALS to the center of our fight. They are joined by Dr. Sarah Parvanta, director of ALS Focus, and John Robinson and Lora Pollari-Welbes, two members of the ALS Focus advisory committee, to walk us through what we learned from the first survey and how listeners can get involved.

Stream the Episode


ALS Focus Survey – Learning What Matters Most for People with ALS and Caregivers

Join Sarah Parvanta, Ph.D. for a refresher on the ALS Focus program. She also discusses the survey 1 results.

Webinar Recording

Presentation Slides (PDF)