Submitted by: Elise A. on Sun, 01/08/2023

Thank you for doing this work. Acknowledging that kids do a lot of this really tough work is very meaningful. I related to a lot of what was said. My siblings and I grew up caregiving for our mom, who had ALS. The physical tasks were often exhausting and frustrating, but serving mediator or emotional support roles for both the ill and healthy parents was, in my experience, the most painful, confusing. Caregiving in general is very difficult, isolating, and emotionally painful/complicated. The Y group sounds amazing, I wish we had that. I would love to connect with other (now adult) children of people with ALS.

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