Submitted by: Gail T. on Tue, 08/09/2022

My brother was diagnosed in April 2021. He has been taking Radacava infusions since then. He still walks, talks, eats and does not use any devices to help him walk or climb stairs. His problems are…..he tires easily and can’t walk long distances….he has shortness of breath episodes. He has lost weight because he can’t eat the way he used to eat…….he gets full quickly and is very uncomfortable if he eats too much…..the people in these videos look much more healthy than my brother. He refuses to take anti depressants and does not want to join an ALS help group because he doesn’t want to see people who will remind him of what’s to come. He doesn’t feel like he can travel…he would love to go to Colorado but he is afraid to fly and he is also afraid of altitude problems in Colorado. Does Ellen have any problems with flying or altitude?

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