Submitted by: Patricia K. on Thu, 06/02/2022

My husband was diagnosed with bulbar in fall of 2020. He passed away at the end of January. Bulbar did not affect his limbs, but he only lived 16 months after his diagnosis. He went on disability from work for the last 6 months and I cared for him at home until he passed. He was only 58 years old. We have been married 30 years and have 7 children. They have been so loving and supportive. We miss Jim every day. I am thankful that I was able to care for him with weekly visits from hospice. I am still grieving. He was my best friend.

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