My aunt lives in East Millsboro, PA and was recently diagnosed with the bulbar form of ALS. Her symptoms started in her leg and have progressed also to her airway. She has trouble talking and has already had pneumonia from it. She can eat but swallowing is hard. She was diagnosed in February and we don’t know how rapidly this will progress. With you all being in PA (I think she even went to Allegheny hospital for an appt), I would love for her to connect with you guys. Let me know and I can give you her info. Thank you. God bless you for you inspirational strength and I will add you and your family to my prayers.
Kelly kochenour