I found out in March that I have ALS. I had 2 cousins die with the SD01 mutation of ALS their Mother (my aunt) was tested & was a carrier but never contacted ALS. There is further family history of ALS. My SD01 did not show mutation but I do have ALS which is progressing quickly. I fell in December & got 2 black eyes, however had signs of twitching & weakness before that. I am going to the ALS clinic in Indianapolis, IN & would willing be in any testing that would help this dreaded disease.