Submitted by: Erin R. on Fri, 05/14/2021

My mom was diagnosed with Bulbar ALS 17months ago. She requires oxygen and she has to have a ventilator to sleep or even lay down. She eats through a feeding tube. She’s lost her ability to speak. I haven’t heard her voice in over a year. She uses a text to speech app on her tablet to communicate. Her hands have started contracting, before long she won’t even be able to type. Those who have ALS deserve more than this, she deserves more than this. For a chance at a few more months with their loved ones, they are willing to take the risks. Please don’t deny them a chance for more.

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