Submitted by: Barry T. on Fri, 05/14/2021

I was diagnosed with Bulbar ALS in November 2020. Anyone can get this disease. In 6 months, I can no longer drive, dress myself, lift my hands, cut my food, or walk. I shouldn't have to die because the FDA will not release, compassionately, drugs that could be used to arrest the disease progression or cure the disease. I am going to die because you do not care care about me. You only care about insurance money. WE NEED HELP NOW!!

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