Submitted by: Barry T. on Fri, 05/14/2021

I diagnosed with ALS on November 19th 2020. I have gone downhill in the past 6 months to the point I can no longer DRIVE, I can barely WALK, and I can barely speak. I have bulbar ALS and upper body neuron damage. I cannot wait for you guys to discuss what drug is effective and what drug is not. I should have compassionate release of any medicine that my doctor at U of M Medical neurology says I can take. I shouldn't have to DIE while waiting on you to make a decision. Please help me!!!

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