Submitted by: Sandra M. on Thu, 05/13/2021

Please allow patients with ALS to access promising treatments. We are willing to take risk. The disease we fight is 100% fatal. I was diagnosed with Bulbar ALS one year ago. A competitive athlete for for decades, now the simplest task leaves me breathless. I require a ventilator to sleep at night. I eat through a feeding tube. My voice is almost gone. Please do not fail us by blocking access to ALS treatments that may help our symptoms or extend our lives. Thank you.

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