My 23 year old son was diagnosed with sporadic Juvenile ALS on March 29, 2021. Since then it has taken all his functions......arms, legs, on ventilator 24/7, and becoming very difficult to talk. This disease is a horrible thing, much less to watch your child go through it. I continue to watch for improved treatments. Working on getting AMX0035 for his use but am hoping & praying for something more miraculous. Are there any updates on this drug?