I have recently been diagnosed with ALS, but began seeing symptoms almost two years ago. My condition was mis-diagnosed a year ago as Multifocal Motor Neuropathy. IVIG treatments seemed to initially show benefit, but my symptoms started getting worse in October, 2021.
I would like to participate in the clinical trial for NU-9. I ask that you contact me when the trial opens for enrollment. I also encourage those constructing the trial to see the drug as something that either cures the disease or it doesn’t, therefore eliminating the need for a control group.