ALS is a horrid disease! Lost my husband after a 14 yr.old battle in sept. It was a very hard situation to handle , I was his caregiver 24/7 for the last couple years with little help from family. He was a trooper so I needed to be too. Our Western PA ALS Chapter was the utmost support. The biggest challenge for both, my husband and I was not having family support or their help. So he had no break from me or vice versa. I vowed that he was staying here at home and we made it happen. As hard as our journey became, I wouldnt of changed it. The only change we always hoped and prayed for was a cure!