My husband Kevin was diagnosed in 2017 with this evil disease. He was showing signs all through 2016 also. What's crazy is, we had a toddler and a baby at the time. His first sign of having ALS was him no longer being able to unbuckle their carseats. That's how evil ALS is. He worked with his hands his whole life and one day at the grocery store he had to call me for help because he couldn't push the button on the carseat hard enough to get our son out. Our son... God that boy would have followed Kevin everywhere. It was a struggle with a lot of denial and feelings of helplessness. We were married in 2006 so naturally I became his caregiver and everyone else in our lives slowly faded away. We made the most of it though until last December when he went home. I am still shattered but somedays are a little better. Our children, now 6 & 7 are coping a lot better as time goes on. I miss him so much. He was absolutely still my best friend and my love. Luckily our coordinator with the Arkansas chapter was a godsend and we made sure he had as much quality of life as possible. From his eye gaze to his custom built power chair, he was excelling with everything they provided us. He had so much control of everything he enjoyed because I could hook anything in our house that was wifi capable to his eye gaze. It was a game changer and he rocked it! I hate ALS so much but I thank God for the ALS Association. They are our heroes. God bless you all and my heart hurts for everyone affected by ALS. We have to find a cure, no one should have to live through the nightmare ALS causes. It's an evil disease and evil follows it. #ScrewALS!
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