God bless you and your children, Amanda. Your post made me cry because I lived the horrible ALS experience with my mom for almost 6 years. We lost her in 1999. Our family bonded but seeing her go through such loss of life, little by little, just broke me.? And what it did to my father is unbearable to think about. To all who are going through this, I pray that God gives you strength….and I pray for a cure.