Spread the Word

Please help spread the word about the National ALS Registry!  This nationwide research program may help researchers learn who gets ALS and why and may advance the search for the cause, treatment and cure for Lou Gehrig’s Disease.  Therefore, it is important that people with ALS across the country are aware of the Registry so that they have the opportunity to participate.

This website has a number of tools and resources that you can use to educate yourself and others about the registry.  Please explore the site to learn more.  The ALS Association also encourages you to share information about the registry with people with ALS and others within the ALS community.  For example:

  • Distribute registry materials like Fact Sheets and Guides at support group meetings, clinic visits or at other locations and gatherings where you may see people with ALS, caregivers, family members or others from the ALS community.
  • Share information about the registry via social media, including Facebook and Twitter, and via any ALS online forums in which you may participate.
  • Follow The ALS Association on Twitter and like us on Facebook. Retweet our ALS Registry tweets and share our registry posts from Facebook.
  • Include information about the National ALS Registry in your email tagline.
  • Upload a video to our website here and share with others what the registry means to you.
  • Become an ALS Advocate and receive the latest ALS registry news directly from The ALS Association. Click here to learn more.
  • Send a letter-to-the-editor of your local newspaper to raise awareness of the registry.
  • If you have a website, consider adding the ALS Registry “websticker” to your site. Go to https://wwwn.cdc.gov/als/ALSButton.aspx to learn how.
  • To see a list of ALS Registry materials that are available and to learn how you can order them free of charge, click here.

These are just a few examples of the things you can do to help spread the word about the National ALS Registry.  With your help spreading the word, we can make a difference in the fight to find the cause, treatment and cure for Lou Gehrig’s Disease.