National ALS Advocacy Conference

advocacy conference


Every year, hundreds of ALS advocates from across the country come together to advance public policies that will benefit people living with ALS and their families. From people courageously battling this disease every day and executive leaders representing The ALS Association's 39-chapter network to clinicians and medical care coordinators, the National ALS Advocacy Conference provides an opportunity for the entire ALS community to unite in Washington, D.C. Following a day and a half of trainings and general sessions, ALS advocates travel to Capitol Hill to share their stories with Congress.

Save the date!

2021 National ALS Advocacy Conference

June 8 – 10, 2021

Until we can meet safely, the nation’s largest gathering of ALS advocates will be held virtually.
Stay tuned for additional details.

2020 Advocacy Conference

Click here to read a complete wrap up of our last conference.

Watch Session Recordings from the 2020 Advocacy Conference

Capitol Hill Update 2020: ALS Advocates Make the Difference

ALS Research in 2020: Update on Clinical Trials, Biomarkers and Patient Perspective Surveys

Care Services in 2020: Adapting to a Changing Environment

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