Professional Position: Retired Chief of Investigations
Company: Public Administrator for Cook County
Location: Chicago, IL

Tobin (Toby) Kucharski first became involved with the organization when his mother, Martha, founded the Greater Chicago Chapter in 2004. When his mother passed away in 2005, he joined the Board of Directors. His mother founded the chapter in memory of his father Edmund J. Kucharski who was diagnosed with ALS and four months later died. Kucharski has served the chapter as Advocacy/Public Policy chair, Chairman of the Board and President. He has continued to work with the State of Illinois in securing state grants for ALS-research and patient services-which total to date, over $10 million dollars. Kucharski was awarded the Rasmussen Advocate of the Year award in 2007.

Prior to his election to the Board of Trustees, Kucharski was an active member of the Board of Representatives where he served both as Vice Chair and Chair.

Kucharski is a graduate of Columbia College-Chicago with a degree in broadcast communications. He resides in Des Plaines, IL with his wife Diane. They have a daughter, Sam and son-in-law Ryan.