Learn about the disease
Find help for yourself or a loved one with ALS
See impact of Ice Bucket Challenge
FDA Accepts New Drug Application for Tofersen
The FDA has committed to deciding whether to grant accelerated approval for tofersen, a treatment for people with SOD1 genetic ALS, by January 25, 2023.
Committed to quality care services for the ALS community
Resources for Navigating ALS
Whether you are newly diagnosed, a military veteran, a caregiver, or someone looking to learn more about how to navigate living with ALS, we can help.
Local support in your area
We offer a variety of local support, including programs such as equipment loans and referrals to local medical professionals, provided by our chapters. We can also help you find a local treatment center or clinic, or support group.
Working tirelessly to push research forward
We expedite the discovery of treatments and a cure for ALS
- 5 genes discovered in the past 2 years
- Over 150 active research projects
- 9 global research collaborations
- New drug Radicava approved by FDA
- Several drugs in clinical trials
Advocacy, Educating, Mobilizing
We focus on educating, advocating, and mobilizing all members of Congress in a bipartisan fashion to benefit people with ALS.
Lou Gehrig Day
Information About COVID-19 Vaccines for People with ALS
ALS Focus Survey Program
Connecting ALS
Blog
ALS Association
Diana Kirk: Why She Fights for the ALS Community
ALS Association
ICER’s Flawed Analysis Set for Public Hearing
ALS Association
Seeking Clarity and Urgency in the FDA's Action Plan
